Application Deadline: August 30th
EURORDIS launched the training with the aim of deepening patient representatives’ understanding of how pre-clinical research translates into real benefits for rare disease patients.
The training equips participants with knowledge and skills so they are empowered to effectively participate in discussions with the researchers, policy makers and companies responsible for research or research infrastructures.
Expert speakers and researchers from across Europe deliver the face-to-face training sessions.
The first edition of the face-to-face training of the EURORDIS Winter School was held in March 2018 in Paris. It covered topics including the history of genetics, diagnostics, new technologies in gene therapy, and drug repurposing and included laboratory visits.
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